Future of Disability Stud

Rachel Adams Talks to Al Jazeera about Arthur Miller's Treatment of his Disabled Son

Rachel Adams, CSSD director and Professor of English and American Studies at Columbia University, appeared on Al Jazeera to discuss American playwright Arthur Miller, who institutionalized and never publicly acknowledged his son Daniel, who has Down Syndrome.

Adams, who also directs CSSD's Future of Disability Studies working group, said: "There is an irony that Miller was lionized for standing up for those who had been victimized and at the same time refusing to speak up on behalf of his son and people with disabilities like him."

Adams also discusses the changing norms around raising children with disabilities in a family environment. Read the article here.

Rachel Adams Publishes Huffington Post Article on Disability Literacy for Children

Rachel Adams, CSSD director, director of the "Future of Disabilities Studies" working group, and Columbia English and American Studies professor, recently published an article in Huffington Post about building disability literacy in children.

"Literacy means not just knowledge, but fluency and comfort with those whose bodies and minds are different from the norm," writes Adams, who also says that "disability literacy will be essential to the educational and work environments of the future."

Adams goes on to list eleven everyday activities with children that are useful for promoting understanding, comfort, and respect toward people with disabilities.

Read the article here.

Keywords for Disability Studies Symposium Explores Key Questions for the Future

Disability scholars, artists, activists, and students gathered at the Keywords/Key Questions for Disability Studies Symposium this October to discuss the future of disability studies.

2015 has been a landmark year for disability studies and activism both at Columbia and throughout the United States, as the U.S.’s foundational disability rights legislation, the Americans with Disabilities Act (ADA), turned 25 this July. The anniversary of the ADA, whose legacy is still the subject of much critical debate, coincided with the release of this summer’s Keywords for Disability Studies (NYU Press, 2015), a field-defining collection of essays co-edited by CSSD director Rachel Adams, along with Benjamin Reiss (Emory University) and David Serlin (University of California, San Diego). The fall semester also marked the launch of Columbia’s new University Seminar on Disability, Culture, and Society, following the conclusion of CSSD’s Future of Disability Studies Working Group last spring.

In celebration of these new beginnings and opportunities for reflection, disability scholars, artists, activists, and students gathered at the Keywords/Key Questions for Disability Studies Symposium this October to discuss the next chapter of disability studies. Photos from that meeting are available here.

The two-day symposium began with an artists’ panel on the evening of October 1, where artists Riva Lehrer, Park McArthur, and Sunaura Taylor discussed the key concepts that have informed their artistic practices as people with disabilities. The presentations and Q&A session covered a range of issues including inaccessibility in the art world, representations of people with disabilities in visual art, and the discursive divides between disability scholarship and activism.

JUST PUBLISHED: Rachel Adams' Keywords for Disability Studies

Future of Disability Studies project director Rachel Adams has co-edited Keywords for Disability Studies with Benjamin Reiss (Emory University) and David H. Serlin (UCSD). 

Published this summer by NYU Press, the collection of 60 essays "aims to broaden and define the conceptual framework of disability studies for readers and practitioners in the field and beyond. The volume engages some of the most pressing debates of our time, such as prenatal testing, euthanasia, accessibility in public transportation and the workplace, post-traumatic stress, and questions about the beginning and end of life."

An invaluable resource for students and scholars alike, Keywords for Disability Studies brings the debates that have often remained internal to disability studies into a wider field of critical discourse, providing opportunities for fresh theoretical considerations of the field’s core presuppositions through a variety of disciplinary perspectives.

Order copies of Keywords for Disability Studies here.  Learn more about the CSSD Future of Disability Studies working group here.

JUST PUBLISHED: Rachel Adams on Access to Aid for the Disabled

Rachel Adams, director of the CSSD working group The Future of Disabilities Studies has published an article in Reuters on the problem of disabled individuals' unfettered access to assistance. Technological innovations are needed and appreciated, writes Adams, but bureaucracy and administrative inefficiency still stand in the way.

Read "What Google can learn from the wheelchair" here.

LECTURE: Ron Suskind on "Narratives of Earned Hope: Or the Ways Adversity Can Build Compensatory Strengths"

Speaking on Wednesday, March 25th before an audience sponsored by the Center for the Study of Social Difference's Future of Disability Studies workshop, Ron Suskind shared his story about pursuing a demanding career in investigative journalism while raising his autistic son Owen. Whether explaining socio-economics in the inner-city, public policy, or his own family, Suskind argued that adversity was a necessary precondition in order to produce insightful journalism.

Suskind won the Pulitzer Prize for Feature Writing in 1995 after publishing a series of articles that became his first book A Hope in the Unseen. The book describes the life of Cedric Jennings, who grew up in inner city Washington, DC before attending Brown University. Suskind followed with three books about the George W. Bush administration’s planning for the Iraq War, their post-9/11 intelligence activities, and their response to the 2007-2008 financial crisis.

To write about Owen in Life, Animated, however, Suskind wrestled with how to treat his family with the same tough standards that won him wide acclaim for his previous reporting. Suskind employed many of the same methods when interviewing his wife Cornelia, their eldest son Walter, and Owen himself, who now lives independently of his family.

When Owen was first born, his family noticed that he did not exhibit the same interpersonal skills—namely eye contact—that most children acquired by his age. Only after the family sat down to watch The Little Mermaid did Owen sustain eye contact with them. This observation led Suskind and Cornelia to use the personas of Disney characters to communicate with Owen.

One evening, after Suskind and Cornelia put Owen to bed, Suskind snuck into Owen’s bedroom with a puppet of Genie from the movie Aladdin. When he popped up from underneath Owen’s bedspread with Genie, Owen had his first extended conversation with his father for the very first time.

Knowing that Disney films would enable Owen to speak about his feelings, Suskind and his family watched hundreds of hours as the basis for dialogue.

Today, Owen is working with filmmaker Roger Williams to produce a documentary about A Life, Animated.

While writing about his family for a public audience was difficult, Suskind argued that journalism was capable of conveying both the joy and pain of family life and especially for families living with disability. While interviewing his family members revealed painful memories, it was also a therapeutic process. Suskind exhorted the audience of journalists and scholars to "seek the jewel." He concluded, "Human beings are not cardboard cutouts. We all have a heart and a soul.”

Interviewing his family forced them to remember a past when Owen’s condition was opaque, but the process of narrating their journey helped place their present-day triumphs in a larger context of "earned hope." For families with disability, Suskind's Life, Animated serves as a template for how to help others understand disability through personal narrative.

Contributed by George Aumoithe, Graduate Assistant, Center for the Study of Social Difference

Image of Ron Suskind in the World Room at Pulitzer Hall at Columbia University in the City of New York, 2015, by George Aumoithe.

Rachel Adams, Director of the Future of Disability Studies Working Group, Won the 2014 Educators Award

The 2014 Educators Award committee from Delta Gamma Kappa, the society of women educators, selected Raising Henry: A Memoir of Motherhood, Disability & Discovery by Rachel Adams, director of the Future of Disability Studies working group. Dr. Adams attended the international convention on Wednesday, July 30 and participated in a workshop with the committee.